Privacy Policy

Who we are

Plan B for PANS is a free symptom-tracking tool and research project for families of children with PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) and PANDAS. It is operated by Rachel Johnson as an independent research and tracking service. The tracker is available at app.planbforpans.com and as native apps for iOS and Android.

We are not a medical practice. We do not provide diagnosis, treatment, or medical advice. The tracker exists to help families see patterns in their child's symptoms over time. Parents remain responsible for working with licensed medical professionals for all care decisions.

What we collect

When you use Plan B, we collect the following information:

• Child information: first name, age/date of birth, gender, caregiver name, contact info, onset history, current treatments, symptom ratings (0–10 scale)
• Daily logs: medications taken, doses, new symptoms, free-text notes you enter
• Weekly check-ins: symptom ratings over time, session modality, notes
• Device info: if you enable push notifications, we store the device token to send reminders
• Technical data: basic server logs (IP, browser, timestamps) for security, retained 30 days

How we use your data

• Per-family tracker: your child's data populates charts, heatmaps, and AI analyses visible only to you and your Plan B practitioner
• AI analysis: when you request an analysis, your data is sent to Anthropic's Claude API. Anthropic does not train on API inputs; see their privacy policy
• Aggregate research: only with your explicit consent; de-identified only
• Push notifications: if opted in, reminder notifications when a log is due

Who we share data with

• Supabase (database) — encrypted at rest, US data centers
• Anthropic (Claude AI) — for analysis queries
• OpenAI (Whisper) — for audio transcription
• Vercel (hosting)
• Apple & Google (push notification delivery only)

We do not sell your data. No advertisers, data brokers, or insurers.

Children's privacy

Plan B is used by parents or legal guardians to track their children's symptoms. We comply with COPPA by collecting child data only through parent entry. Parents can request deletion at any time.

Your rights

Email rachel@planbforpans.com to:

• Request a full export of your data
• Correct inaccurate data
• Delete your child's record (within 30 days)
• Opt out of aggregate research
• Revoke push notification consent

Data security

All data transmitted over HTTPS, encrypted at rest. Plan B is a small-team research project and is not HIPAA-certified. Do not include protected health information you would not be comfortable sharing through a non-HIPAA service.

Data retention

Your child's data is retained as long as you use the tracker. Stop using it + email us and we delete within 30 days.

Contact

Rachel Johnson
rachel@planbforpans.com